Medically speaking, we've gone backwards, and now slowly moving forward in his lengthening (check the last blog for details), Zackary is healing from his toe surgery nicely and his weight bearing is getting more each week. We had seen the doctor about a week ago and he said the bone is looking more promising, better news then lets go backwards for sure! He still kept us at 2 turns a day, but I'm holding my breath for next weeks appointment where he will hopefully up the movement per day. The ultrasound machine is going strong at an average of 8-10 hours a day of wearing it and he is really enjoying the pool time even though it's mostly exercises and he doesn't get 'freetime' swimming that he wished for. Another new thing he is doing is the anti-gravity treadmill, the 'alter-G'. It is the coolest machine that brings me to tears every time I watch him walk without assistance. It's a small glance into a future that seems so far away most days. Each of these exercises actually require him to bear about 50% weight on the left leg. This is something the dr alllowed under therapist supervision that will hopefully stimulate bone growth. Since we are lengthening at such a slow rate, his flexibilty continues to kick butt so we actually do not have PT on tuesday or thursdays, but once we up the lengthening that will go back to mon-fri.
Where we spend many hours Monday, Wednesday, and Friday
On the non medical side of things the last couple weeks have been pretty full considering. Adam's mother Laura was able to come out here for about 5 days so I could fly home for a quick weekend break. It was beyond appreciated and I think it gave Zackary and I a little change of pace amongst the mundain daily tasks. Though Laura didn't quiet fall in love with the big city living, she did provide Zackary with new memories and adventures and that I am thankful for! While I was at home Adam and I were able to play in the Carrie Tingley Hospital fundraiser of mud volleyball. This was a place that Zackary was seen at for many years so it always is an extra bonus to give back. Plus it forces us to have a fun day full of mud and memories! Going home was very relaxing for me and it made us realize how important HOME is. We always appreciate visitors, like the one we get tomorrow morning in a ballooning friend Mark, but in order to be recharged we have to go home!
We have decided that any more visits between here and the end will consist of Zackary and I going home, instead of Adam and Johnathan coming out here. Home is good for the soul. Plus I have a teenager who is putting in a full time job number of hours into football every day. So, Zackary and I will making our first trip home together in a week from today! I wish it was for nothing but good things, but sadly it's not. A week ago yesterday we were forced to go to doctors appointments filled with tears in our eyes when we found out my grandfather had passed away. (My step dad's father). This was hard for me on so many levels but to be away from my family during this hard time was heartbreaking. So our trip back for the 4th of July will include a funeral. I know my family understands why I'm gone but I would have done anything to be home with them instead. He will be missed, but we will be spending the whole long weekend remembering him, laughing and making memories as a family and I know he would be happy to know that.
This coming Thursday will include a pt visit, swim therapy, a follow up doctors appointment (hopefully filled with nothing but great news and positive movements) and packing for home! So needless to say it'll be a busy day but it will be worth it and I will be posting all the new doctor news once we get it. Thank you all for continuing to support us through this chapter of our lives that we are praying will end in 1,2 maybe 3 more months. Please continue to pray with us and spread the word for those who may want to support us as well.
Until Next Time~
Momma Miller
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