My Sleeplessness Equals Good News

It's 1am, what am I doing awake?! My to do list is short, my day is scheduled and my angel of a son is sleeping soundly in the bed next to me. I can't complain, I also can't fall asleep. So instead of tossing and turning or flipping through one more social media site (don't worry, I get my daily fill and can tell you who's dating whom and who wore the prettiest dress to the Met Gala yesterday) I will update the blog with nothing but good news!

Today (Tuesday 5/3) marks 6 weeks of surviving daily dr visits, high humidity, weekly movie breaks and answering the age old question of "do I really have to do school today mom?" Contrary to popular youth belief the answer still hasn't changed mon-fri no matter how many times you ask, how many kisses you give or what time of day you pose the question. If you can't tell by above comments our lives have turned into a very systematic daily grind and I think it's helped the time go by quickly. However time seems so slow when I think about the last time I saw my husband, teenager and puppy :-( lucky for me I get to see 2 out of the 3 on Friday for a whole weekend!

Sorry, back on track to positive news... Friday marked one month of PT so they did his re-evaluation and he did AMAZING! The therapists are very proud of his continued movement and he even has an increase of 5 degrees in the hip area, while his knee is flexing 90 degrees or more! This is huge for his ability to continue lengthening and not to toot my own horn (because it's obviously all Zackary and his ability) but they said they know the flexibility is being aided greatly by how hard we (he) are working at home on our pt, tummy time and casting.

 In other good news we saw the doctor today in our bi-weekly check up. He's seeing positive things in the X-rays, like usual. He says there's almost 3cm of growth (going for 8cm total) and the rate we are lengthening at is perfect. We will continue to lengthen 3 times a day at .25mm per time, and for you non math people that's about another 69-70 days of lengthening, which gets us to the middle of July! There's always a chance of speeding up or slowing down but as of now we can't ask for better. He also continues to be infection free which means we are about 2 weeks away from being cleared on that! There's still not a ton of bone regrowth showing in the X-rays but we were told that's normal and obviously X-rays can't show everything and the healthier nutrition we are focusing on along with the bone growth supplements he is taking the perfect combination for Zackary. Here's a shot of X-ray day (as we call it) and of course, he's got a huge smile on his face. Also if you can see it, the bone separation is on either side of the huge rod going through the middle of his leg.

The last good news is pretty basic but important for you all to know: we are doing really well out here in Baltimore, missing our home for sure, but still doing well. We make the most of every day, play lots of ping pong, go for walks when it's not raining and love face timing anyone who will participate, oh and if you have the app KIK Zackary loves to chat with people all day! LOL So thank you all for your continued support (financially, emotionally, and spiritually) and love. We truly feel it all the way out here. Plus, you gotta know it's not that bad when the one who's had it the roughest leaves little notes like this for me in our daily log journal. He sure does have my heart in his hands!

Until Next Time~
Momma Miller