Saturday, April 2, 2016

First Things First

     First off, let me start off by saying THANK YOU! To everyone that is in our lives sending love to us one way or another we thank you!
    Today marks the first full week of being released from the hospital and I must say we are leaps and bounds farther along then I thought we'd be.  Zackary is down to tylenol only when he wakes up, right before PT and then bed time.  For the first time yesterday he lifted his leg about 2" off the bed all on his own.  This week coming up with be our second week of mon-fri PT at the hospital and I must admit that I think everyone has already fallen in love with Zackary, but who's really surprised by that?!  Yesterday we also started 'tummy time' for the first time.  I swear we are back to having baby techniques sometimes but luckily I loved that stage and it was something new for Zackary and he says it's a great rest from all the pressure on his back side.  He even got to sleep that way last night and I haven't seen him sleep that hard in a long time!
     Tuesday was the first day that we started leg lengthening and so far so good.  We do .25 mm every session and we do 4 sessions a day.  So by the end of today Zackary's leg will have grown 5mm total.  This is a great start to the 80mm total we are hoping for.
     Tomorrow also marks our first day without daddy and brother.  Adam and Johnathan head home around 2pm tomorrow afternoon and will leave Zackary and I here to spend lots of time coloring, playing ping pong, watching movies and taking walks (well I walk, he rolls).  He is not quite able to sit up completely to do things at a table for long periods of time but we are becoming very creative at coming up with ways to adapt.  He's also very content with wheelchair time in different places doing different things.  I caught him the other day enjoying his first window time...
     This photo embodies all that Zackary is; adaptable, content, accepting, patient, calm and all around great kid!  As long as you feed him taco bell every once and awhile and make sure his electronics are charged he's good to go.  
     We've ventured out to walmart a few times and even started cooking for the first time this week.  Both exciting things after the last couple weeks we've had.  We are starting to do well in rountines and though night shift has seem to become our norm everyone is sleeping well and doing what needs to get done.  
    
Until Next Time~
Momma Miller
   

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